My name is Joelene Jackson but my friends call me by my nickname Jackie. You
have responded to my friend tricia via e-mail in connection with my kidney
failure and me looking for a kidney transplant. My two kidney donors both failed
the tests and seeing that I have policystic kidney disease and so does my only
son I have no more family members I can turn to for help in connection for a
kidney.
I want to thank you for replying to her as she forwarded your email to me. My
nephroligist is currently in England and not available to help me with some test
results as their offices is closed till after the easter weekend.
The following info is what I have available from the latest test results that
I could find for you but some info is not available to me yet. I hope this info
will be of some help to you as yet.
Currently the following info is all I have available till my dr returns from
England and until I can get an apointment I cannot answer all your
questions.
I have taken a 24 hour urine monster and measured it and it is currently only
350ml in 24hours that I pass.
From time to time there is foam in my urine. The colour is currently a little
dark but not to dark with tiny obsticles as I call it in it.
The last ultrasound that was done the results I can remember was the one
kidney 17" and the other 19". The last time I saw results the renal funtion was
4 but they tell me it may vary due to the dialysis. They did a ultra sound a few
years back and it showed that the kidneys is covered in cysts.
I am on dialysis 3 times a week for 4 hours at a time. I get eprex twice a
week and also an iron suplement twice a week. I do have edema in the morning
.They draw blood on a monthly basis but I havent received any back yet seeing it
is a public holiday here and the person working with the results is currnetly
also on leave. I am still waiting for the results of the red and white blood
cells results and all outstanding results that i can get I will send to you as
soon as they are available.
As soon as my nephrologost returns from england I will try to get all
outstanding results for you.
My answer :
To be honest, your condition is serious and because we have many patients
with similar illness condition like you, I can undertsand your condition without
test reports: low renal function, low GFR, serious anemia, high creatinine, high
potassium, electrolyte disturbance, edema, flexible blood pressure, nausea,
vomitting and so on. Now, what I want to know is your heart condition and
whether you test for HIV, pneumonia, hepatitis and malaria. You know, to
patients with this diseases, there are requirment on medication. Ok, the
following are our suggestions for you.
Firstly, your creatinine is high. To some degree, many complications caused
by high creatinine are more terrible than the disease itself. Creatinine is a
kind a metabolic waster and there are mainly three ways to lower it: medicines,
dialysis and treatment for kidney disease. To your condition, Dialysis is better
for you now for it can lower creatinine in a short time, but dialysis can not
treat kidney disease and improve kidney function. The cause of high creatinine
is the damage on kidneys. Kidneys can not eliminate toxins out, then creatinine
and so on pile up in kidneys. So, if you want to lower the creatinine
effectively, it is better for you to repair kidneys and improving kidney
function. After renal function improves, your creatinine will be lower
naturally.
Secondly, it is necessary for you to treat your anemia for serious anemia can
lead to heart attack. Anemia is a common manifestation of patients with end
stage Renal Failure and when the serum creatinine is higher than 4 ( it is about
320), anemia will occur. And it may worsen with the aggravation of renal
function. The decrease of EPO generated by kidney; inhibitory action of toxins
to bone marrow; short of red blood cells’ life; the insufficiency of iron, folic
acid, protein; lose blood caused by dialysis; hyperparathyroidism and so on. All
of the above reasons can contribute to the occurrence of renal anemia. Usually,
patients treat anemia by iron tablets, injections of EPO or the improvement of
kidney function. Similar to the creatinine, the basic and effective way is
improving kidneys functions first.
Finally, as you know, time is the key for your treatment. if you can not take
kidney transplant in one month, we hope you can consider stem cells transplant
and the following are our reasons:
1. Dialysis can help reliving some symptom caused by toxins, but can not
repair the harm on kidneys. Your renal function is decreasing while only
dialysis. Some complications like anemia can not be treated by dialysis.
2. Different from kidney transplant, stem cells can be transplanted without
match. So you can take time to save and improve your renal function. Now, 96%
renal function has been damaged, there is no time to wait.
3. you are taking dialysis regularly and you still have urine, that is, your
filtrating ability is working, that is why we can suggest u stem cells.
4. According to the information you provided, your kidneys enlarged a lot and
the enlargement is caused by PKD, so we will apply Chinese medicine to shrink
the cysts as well, which will also do good for your kidneys.
Learn about
how to avoid polycystic kidney disease develop renal failure